Category Archives: Uncategorized

This post is long overdue…my apologies. About a month ago we flew down to Jacksonville, FL to start a new treatment for K. During our last intensive in June, another child’s mom introduced us to the idea of spinal stimulation. It is a relatively new therapy being used in kids with Spina Bifida and CPContinue reading “Spinal Stimulation”

It’s been a few days now since we finished our second intensive. I have had some time to process it all. Overall we had another amazing experience and lots of good progress. K worked extremely hard. I was disappointed with his emotional last day, initially, but after some time to process that has waned. WhileContinue reading “Intensive 2 Final thoughts”

Sorry I missed yesterday, I got so busy packing that I didn’t have time to write. I will do a quick recap of the last 2 days and then sometime next week will sit down to reflect on everything when I have more time. Day 14 was in the top 2 days for this entireContinue reading “Intensive 2/Day 14 & 15”

How did we get here? This intensive seems to have really flown by, maybe not for K, but for me it has. Big brother continues to be the best motivator. K has been pushing his limits this weeks. He has walked farther and farther each day. He has done things quicker and with more strengthContinue reading “Intensive 2/Day 13”

Today was a whole new day! Big brother came home last night and joined us today for all K’s sessions. Nothing is more motivating than Big brother. It was a whole new level of motivation. K had his best day to date. He walked on the treadmill for 6 mins X 2. He has neverContinue reading “Intensive 2/Day 12”

Today we started our last week for this intensive. Honestly, today was rough. I think all the work K has put in the last 2 weeks is finally catching up to him. He was still in good spirits, but his effort was lacking. He needed a lot more breaks today than he has ever needed,Continue reading “Intensive 2/Day 11”

10 days down! That’s 40 hours of therapy for K. Wow that’s a lot of therapy. It is pretty unbelievable what these kids can do. I watch as all the kids push through their sessions, and it’s pretty darn amazing. These kids go through more in their day to day lives than most of usContinue reading “Intensive 2/Week 2 Wrap Up”

We had another strong day. Today we were in a silly mood. Lots of laughs to be had. Over the years this has become a coping mechanism for K. When he is really tired he becomes really goofy. I won’t lie, I don’t hate it, because it beats the heck out of crying nonstop. HeContinue reading “Intensive 2/Day 9”

Ohhhhhhh we are half way there… (did you get the song reference?) Today marks the official half way point of the intensive. We officially have less days left than have have pasted. This intensive has gone really fast. It’s probably because we are home, rather than staying in a hotel in the middle of winter.Continue reading “Intensive 2/Day 8”

I forgot to post yesterday so I will just combine them into one post. We started off week 2 strong. K came back full of energy ready to go. All his therapists had to up the difficulty this week. This is great news because it means this intensive is working…but it also means that itContinue reading “Intensive 2/Day 6 & 7”