Category Archives: Uncategorized

Yesterday we wrapped up week 1 of K’s second intensive therapy. He did amazing all week. He still struggled during his 3rd hour, the fatigue was real. But he still worked hard and did all his exercises without too much fuss. We all noticed he required a lot more “cuddles” and “breaks,” but the workContinue reading “Intensive 2/Week 1 Wrap Up”

Not a big update today. Today was a good day though. K worked very hard all day. We started to hit the hour 3 slump, but he bounced back well and pushed through strong today. I am constantly amazed by how hard he works. He is already showing improvements and some therapists even mentioned havingContinue reading “Intensive 2/Day 4”

We had another good day of hard work. We can already see some new strength gains in just 3 days. More confidence in certain moves and muscle memory being built. But oh the fatigue is getting real. By hour 3 he had his “I am tired and over this” look on his face. He isContinue reading “Intensive 2/Day 3”

K had a great day today. He slept so well last night and was ready to go this morning. Being able to come home to our own house is really nice. Last intensive we had to a lot of traveling, which, while exciting was very draining on both of us. I know it’s only dayContinue reading “Intensive 2/day 2”

It’s been over a month since we returned from our intensive therapy session at the NAPA Center in Boston. I can’t believe it has already been a month! Life has been so crazy busy for us. We just got back from a week of house hunting in our next location. So we have been onContinue reading “One Month(ish) Update”

We have been home from Boston for almost 2 weeks now. Not much new to really update on. I think I grossly underestimated how hard it would be coming home and doing life and trying to find time to add in therapy. In fact we have done almost zero therapy in the last 2 weeks.Continue reading “2 Weeks Post Intensive”

We made it! It was a long day of travel, but we are back home and it feels so good. Today went really smoothly. I am exhausted but my heart is so full watching my boys play together again. Thank you everyone who has been following our journey. I hope to post an update inContinue reading “Back Home”

Well we made it! 3 weeks of Intensive Therapy is in the books. Honestly I am still trying to process everything from the past 3 weeks. I plan to do a a more thorough write up in a few weeks after I have had time to process. Today was emotional for me. The thing isContinue reading “15 And That’s A Wrap”

I can’t believe today was our second to last day. This week has absolutely flown by. Yes it’s been hard this week, but I can’t believe tomorrow is our last day. I honestly thought today would be a disaster. K woke up sometime before 4:30 am (I didn’t look at the clock until 4:30), andContinue reading “Day 14”