Day 13

Today was probably K’s hardest day. It wasn’t the most physically demanding but the fatigue of the last 3 weeks is really setting in for him. I could tell from his morning session we were going to struggle today. He started to shut down immediately this morning when asked to get ready to get into the spider cage.

He pushed through his morning session but he didn’t do it with his usual gusto. He was also giving me a lot of attitude all day over every little thing. I mean I can’t blame him he has done 52 hours of therapy in the last 3 week, only 8 more to go. Considering we do on average 8 hours of therapy a month you can see why he is over it. It’s hard freaking work and he is doing it day in and day out.

The afternoon we got through. Lucky for us he decided to manifest his fatigue as pure goofiness most of the time. While we didn’t accomplish as much as we do in a typical day he still got work done.

Biggest thing today was focusing on filming exercises that we can continue to work on at home with him. I got to personally try helping him with some of the things that he has been doing so the therapists could make sure I was able to do it. It was actually very nerve wracking to do. These people have thousands of hours of experience knowing how to place their hands and hold the kid to make sure they are safe and here I am trying to do it with no experience.

I managed to do everything we needed to do. Here is hoping that my kid will work with me as hard as he does for the therapists…wishful thinking. Sorry no photos today because we were focused on filming to prepare us for going home.