One Month(ish) Update

It’s been over a month since we returned from our intensive therapy session at the NAPA Center in Boston. I can’t believe it has already been a month! Life has been so crazy busy for us. We just got back from a week of house hunting in our next location. So we have been on the move. (More on that to come).

But lets talk all things therapy and K post NAPA.

I will admit that the transition was hard and we definitely have been slacking on the home therapy. The reality is that our life has been insanely busy and we just haven’t gotten a routine going. I have felt so guilty. First I was playing the “he needs a therapy break” card, then “we are so busy” card, then “we are traveling house hunting” card and well they are all excuses.

But this week we made a big change and I finally feel like I am getting on top of this. K’s feet were still not fully healed from his braces not fitting 100% at NAPA and we have been working through it ever since we have gotten back. We have been holding off on trying to put him full time in his KAFO’s because we were worried how he would handle them all day and how his feet would fair.

But this week we said to heck with it lets try it and just see how 1 day goes. So on Monday we sent him to school with his KAFO’s and his walker (he still had his chair if he needed it for long distances or got really tired). He handled it like a champ! So we sent him a second day, and a third, and a fourth and a fifth!

We made it one whole week in the braces! This is a huge step because this has allowed him to use his walker during the day while at daycare. He walked to his class and out of his class all but 1 time this week. And my heart wants to burst.

Last night when we went to his old classroom I just wanted to cry with joy. While I was talking with his Pre-K teacher K went exploring the classroom on his own. He managed to side step the whole length of a cabinet without his walker while standing then proceeded to stand with no hands with his back against the wall! No prompting, no begging or bribing to do so.

This is the kid who would rather crawl everywhere than walk or stand. He has the confidence and will to walk and stand on his own now. He has the strength to do it without getting super fatigued. This moment right here is why we believe in the NAPA center. This right here was everything. This independence was what I have been dreaming of but never imagined would happen.

I am so stinking proud of K.

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